TGIF and the end of another long week. Every day in Emerson's life is a sprint. Link the days and weeks together and every month is a never-ending marathon of therapies, appointments and activities. But the weekends are just a little bit slower paced around here and we look forward to them. Here's a gander into the nonstop therapy schedule of a typical week in Emmy's life. This doesn't include all of her doctor's appointments which include a pediatrician, neurologist, epileptologist, pulmonologist, orthopedist, ophthalmologist, gastroenterologist, urologist, ENT, optometrist, dentist and dietician who all like to see her every three to six months. Keep in mind, this is a two-year-old we're talking about!
Monday:
11:45-12:30 - Vision therapy;
3:00-4:00 - Occupational therapy.
Tuesday:
9:00-10:00 - Travel to NAPA Center;
10:00-11:00 - Feeding Therapy and VitalStim;
11:00-12:00 - Cuevas Medek Exercise (CME);
12:00-1:00 - Travel home from NAPA Center.
Wednesday:
9:00-10:00 - Physical Therapy;
12:00-1:00 - Developmental Therapy;
2:30-3:30 - Hippotherapy.
Thursday:
9:00-10:00 - Physical Therapy;
11:30-12:30 - Travel to NAPA Center;
12:30-1:30 - Cuevas Medek Exercise (CME);
1:30-2:30 - Feeding Therapy and VitalStim;
2:30-4:00 - Travel home from NAPA Center.
Friday:
9:00-11:30 - CHIME Infant & Toddler Program;
3:30-4:30 - CranioSacral Therapy.
Saturday:
12:00-2:00 - Masgutova Neurosensorimotor Reflex Integration (MNRI) .
Sunday:
OFF.
But that's not enough, and each day we're also expected to work on more therapy in our "free time". It's exhausting for her and exhausting for me, but we do it, because we know it's important. Yep, she's a STAR!
Emerson spends a significant amount of time in therapy, with doctors and trying special toys, equipment and products to suit her very specific needs and limitations. Along the way, we've found ourselves sharing what we learn with other parents of kids like Emmy and often are asked about our experiences and insights. This blog is meant to share our experiences while also celebrating Emerson's extraordinary progress. I hope she brings hope and inspiration to all who follow her journey.
2 comments:
Total rockstar!!
You are an AWESOME Mom with an AWESOME star...She shines brighter than most :) Cant wait to see her progress :)
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